Financial Resources for Parents of Disabled Children.

For many parents, receiving a diagnosis for their baby not only brings emotional stress but financial turmoil as well. Hospital bills, multiple doctor visits, therapies, and nursing care can have a huge impact on a family’s finances. Even with insurance, there can be hefty deductibles to meet and battles to get authorization for necessary services. …

The Annual Cleft and Craniofacial Panel Visit.

It's been a whirlwind of a day. Up and on the road before dawn, and a four-hour long appointment with the Cleft and Craniofacial Panel at UC Davis for Chance and Lilly. It's a lot of sitting in a tiny room while a revolving door of clinicians come through and do exams, take histories and …

Some Thoughts on “Celebrating” Autism Awareness Month.

April has long been known as Autism Awareness Month and April 2nd as World Autism Awareness Day. Since my daughter’s diagnosis years ago, I have been involved in many online support groups, read many blogs, and participated in a number of discussions about what exactly this month should be about, or if it should even …

Autism: The Beginning of Our Journey

Lilly was always a complicated child. Born with multiple medical issues, she didn’t meet most of her milestones in her first year. She didn’t speak because of scarring on her vocal chords, and she didn’t eat; she was primarily tube fed for the first 7-8 years of her life. Even now she can only tolerate …

What would happen?

Tonight, two days shy of my forty-sixth birthday, I participated in my first ever lockdown drill. Instructors at my school recently participated in ALICE (Alert, Lockdown, Inform, Counter, Evacuate) training, which is described on the website as a more proactive method of dealing with a violent intruder. Proactive, as in doing more than sitting quietly and hoping you …

The Best Decisions Can Be The Hardest

So Lilly is in 5th grade this year, and around here, a major rite of passage occurs in 5th grade- WES Camp. Environmental sleep away camp for a week with your school. I think it's a rite of passage everywhere around this age: I remember going in sixth grade, which back then was the last …

How Social Stories Have Saved the Day!

Social stories were introduced to us by Lilly's ABA therapists a couple of years ago, and have proven to be one of the most valuable tools in our arsenal to modify her behaviors. What is a social story? They were created by a woman named Carol Gray in 1991. They are short, concise descriptions of …

You Can Choose How You Respond.

You can't choose how people behave towards you, but you can choose how you respond. The article below is a powerful reminder of that. In a nutshell, it states that you can learn from hurtful people how you DON'T want to be. People come into our lives for a reason. Some stay for years and …

A Cold Isn’t Just a Cold Around Here.

I write this post as I am sitting ten feet away from my coughing, feverish nine-year-old. Cold and flu season is still in full force, despite today being the first day of Spring. Our youngest son has chronic lung disease. In his seven years, he has been hospitalized several times for respiratory issues that have …

And this is why we can’t have nice things

I was cleaning the other day and I noticed something a little...off. Then I realized that one of my little lovelies had themselves some fun with scissors. Of course, everyone is denying it, but I have my suspicions. Granted those blinds are over ten years old and need replacing anyway, but seriously, kids? Paint picked off …